Uganda Parliament week 2018 raises over $20,000 for establishing Albinism center.

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Kampala,Uganda

The Uganda Parliament Week 2018 has kicked off with an estimated $ 20000 (UShs 75 million) raised in cash and pledges towards the establishment of a centre for people living with albinism.

The funds were raised as a result of the Charity walk flagged off by the Speaker of Parliament, Rebecca Kadaga, on Sunday, 21st January 2018.

The charity walk is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018. Participants led by the Speaker, and included the Leader of the Opposition in Parliament, Hon. Winifred Kiiza, Members of Parliament, and the general public walked from Parliament Building into the city centre and back to the starting point.

People living with Albinism are seen carrying a banner during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.

The Speaker called on MPs to prioritise the debate on Albinism when House resumes. She noted that although the Constitution clearly states the right to health, there is no enabling law that addresses the issue of people living with albinism.

“The time is now to stand up for those who have no voice, let us be their voice and ensure that we have that debate, and come up with resolutions,” said the Speaker.

Kadaga also directed the Clerk to Parliament to ensure that relevant ministries including that of Health, Justice and Constitutional Affairs and Education and Sports participate in next year’s charity walk, arguing that they play an important role in addressing the issues of People living with albinism.

The Speaker also revealed that the Parliamentary Commission will be implementing a decision to employ people living with albinism.

“I am happy to report that last year, I made a pledge that we shall employ people living with albinism; this year, we shall employ at least one person living with albinism in Parliament,” said Kadaga.

The People living with Albinism applauded Parliament for providing them with a platform to address their grievances.

Participants including People living with Albinism are seen during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.

The Executive Director of the Association of People Living With Albinism, Jude Ssebyanzi however appealed to the Speaker to ensure that skin cancer and sunscreen are included in the current draft Cancer Policy. He said that due to the omission of sunscreen in the Cancer Policy, it is categorised under cosmetics, making it costly.

“The current Cancer Policy is worse than Ebola for people living with albinism because it doesn’t mention skin cancer which is affecting persons with albinism, as a result, people with albinism are dying of skin cancer,” said Ssebyanzi.

He added that the Universal Primary Education, Universal Secondary Education and Special Needs programs are discriminatory.

“These programs do not cater for people with albinism and as a result, teachers do not know how to handle us and this has led to high school drop out of people with albinism,” said Ssebyanzi.

In a play performed by the Luwero District Albino Association highlighting the plight of albinos, the group decried rampant discrimination in the health, education sectors and while seeking for employment. They appealed to the Ministry of Education to make it a requirement to print examination papers in larger font sizes and have albinos sitting at the front of classes to improve their learning.

People living with Albinism are seen acting in a play that explains how they are discriminated in School,in places where they look for jobs because of their Skin Color.This was after the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.

There are 375,000 people living with albinism in Uganda. As such, Parliament started a Charity walk last year to fundraise for establishment of a centre for people living with albinism which saw UShs 35 million raised. The plan to establish the centre for persons living with albinism is a five year project.

Among the organizations and institutions that participated in this year’s charity walk were ministries including; Office of the Prime Minister, Foreign Affairs and Health. Government Departments and Agencies were also represented and these included; Uganda National Bureau of Standards, National Housing Corporation, Bank of Uganda, Kampala Capital City Authority and National Forestry Authority.

The private sector was also in attendance and those that participated were; UMEME, Barclays Bank, Centenary Bank, Bank of Baroda, Diamond Trust Bank, Bank of India, Tropical Bank, ABC Bank, Bank of Baroda, Equity Bank, GTBank, Jomayi Housing Estates, AAR insurance and UAP insurance.

Uganda Joint Christian Council also participated in the charity walk as well as the media including; NTV Uganda, NBS Television, Kwese Television and BBS Television.  Similarly, four universities participated and they were; Makerere University, Kampala, Kyambogo University, Uganda Christian University, Victorious University and the East African University.

On Monday is an ecumenical thanksgiving service and departments in the Parliamentary Service will be exhibiting their services in the Parliament South Wing motor vehicle parking.

A young man living with Albinism performing after the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
The Chairperson of Equal Opportunities Commission explaining a point about people living with Albinism after the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
The Chairperson of Equal Opportunities Commission Mrs Sylvia Muwebwa Ntambi (L) Teopista Sekitto,NTV Business Manager and Rashid Musisi,a Manager with Centinary Bank shortly after the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
R-L:The Speaker of Ugandan Parliament Rt Hon Rebecca Kadaga,Business woman Hersi Amina and National Forestry Authority Board Member Prof.Dr Maggie Kigozi after the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
Participants including People living with Albinism are seen during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
R-L:The Speaker of Ugandan Parliament Rt Hon Rebecca Kadaga,(L) , the leader of Opposition Winfred Kiiza (second left) and other participants after the charity walk which is part of activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.

 

A man carrying a child with Albinism during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
Participants are seen performing Aerobics before the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
R-L:The Speaker of Ugandan Parliament Rt Hon Rebecca Kadaga,(C) and the leader of Opposition Winfred Kiiza after the charity walk which is part of activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
A lady is seen performing Aerobics before the charity walk which is part of activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
R-L:The Speaker of Ugandan Parliament Rt Hon Rebecca Kadaga, National Forestry Authority Board Member Prof.Dr Maggie Kigozi (middle) and the leader of Opposition in the Ugandan Parliament Winfred Kiiza after the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
Participants including People living with Albinism are seen during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.

 

Participants including People living with Albinism are seen during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
The POlice Band led by the Director of Music in the Police Force Mrs Kakooza during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
Director-Communications Chris Obore(left) is seen with Uganda’s Business woman Amina Hersi participate in the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
National Forestry Authority (NFA) boss Michael Mugisa (left) is seen participating in the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
People living with Albinism are seen carrying a banner of Uganda Albinos’ Association in the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.
Victoria University representatives are seen during the charity walk which is part of the several activities to mark this year’s Parliament Week which runs from 21st to 25th January 2018.Photo by Ronald Kabuubi/Kmaupdates.